So we got a bunch of good news when we talked to her nurse first thing this morning. With any luck, this will be her last iv unless they have to do any more surgery before she's discharged. They'll keep giving her antibiotics through it a few times a day, but when it starts acting up they'll just pull it and won't have to put in a new one.
Her feeds have continued to go well and she's clearly motivated to eat even if it is hard work. She takes a bit of prodding because she like to go to sleep after she starts feeling satisfied, but we were able to get her to finish her whole bottle this morning and didn't have to give and via ng tube!
The nurse also told us that starting Saturday we'll be able to put her on her side and back for a couple hours at a time. Should help feeding go a bit better and be a bit more comfy for her we hope. And pretty soon we'll be able to hold her a little as long as she stays on her belly even if it is a bit awkward at this point.
There's all sorts of talk about gearing us up to take care of her once she goes home, so I'll take that as a good sign. We've been helping with care time since pretty early on (e.g., taking her temp, helping change her dirty diapers, feeding her via ng tube or bottle). This morning the nurse walked Amanda through cathing her and she did awesome in spite of the added challenge of doing it while she's laying on her belly. They're also talking about changing her dressings and teaching us to do it, which sounds like she may actually get to take her home before those are all the way healed. At this point, I guess it's mainly going to come down to how her hydrocephalus progresses and how the ultrasound looks next Monday.
