Monday, September 23, 2013

Tryke Day

Yesterday was Tryke Day for us.  Addy was soooo excited about her new wheels!

We did a ten-parking-space loop in the parking lot at least 5 times before dinner, then she rode the whole way from the AMBUCS trailer to our car, then she had to do another quick ride when we got home before she went in the house.

Saturday, September 21, 2013

Just around the corner

Halloween is coming!  I made fantastic progress on Addy's princess costume (still needs a zipper and a hem, but it's otherwise done as far as I'm concerned).

It's McCall's pattern 6141 in a girls size 3/4.  Or at least, that's the pattern I started with.  Bodice was crazy (and too big) so I redrafted the front as a single piece and modified the back to be a bit smaller.  The yardage was off by a lot, too, so the skirt isn't quite as wide at the bottom as originally designed.  Overall, though, I was able to alter/draft, pin, cut, and sew the whole thing (less the hem and zipper) in less than 12 hours.  Not bad.  And Addy seems pretty pleased with the outcome, too!

Nora's dragon costume is waiting on the arrival of the awesome lizard fabric I ordered yesterday.  I'm planning on a hoodie dress with spikes down the back and wings between the sleeves and the body.  Should be fabulous!

Friday, September 20, 2013

These canes were made for walking

Addy walked about 10 feet across the living room this morning using her canes, almost all by herself! Miss C hovered nearby in case Addy lost her balance and had to remind her not to get ahead of her canes a few times. Other than that, she placed her canes and took her steps all by herself. Yay!

Come on weather forecast

Saturday's forecast just gets more miserable looking every time I check, but so far Sunday is looking to be a decent day weather-wise.  I'm hoping that holds true because we're supposed to pick up Addy's AmTryke on Sunday!

Sunday, September 15, 2013

Raising awareness

It's September, which means that it's Hydrocephalus and Chiari Malformation Awareness month (it's also several other awarenesses' month, but hydro and Chiari are what hit home for our family).  So consider yourself aware and check out some info if you would like to  (Chiari info and Hydrocephalus info)

No, I didn't forget to make you aware of Spina Bifida.  SB awareness is next month!

Friday, September 13, 2013

We've got 3; do I hear 4?

Nora has been making a sound like grinding teeth today, which seemed weird since she only has the 2 bottom teeth.  It turns out that isn't the case any more.  The top left tooth has just barely popped through.

Tuesday, September 10, 2013


I took Addy's canes to the mobility vendor's office today to see if they could get them straightened out--success!  One of the canes had a slight bend in the handle piece, which was preventing it from sliding over the post on the base correctly.  A pipe cutter remedied the situation.  And some Hello Kitty Duck Tape transformed the canes into quite the fashion accessory!

Thursday, September 5, 2013


We have canes!  

They're the aluminum canes that Addy had tried out several weeks ago at the therapy center.  They still need a small height adjustment, but we have canes!  

Right now it's a two-person job to help Addy use them--one in front to help with cane placement and one behind to help with balance.  The biggest problem is that she's used to being super speedy in her walker and now we're having to slow down again and really think about each step.  I figure in a month or so she'll be pretty independent with the canes.

Monday, September 2, 2013

Comedy gold

After I told the banana/orange knock-knock joke to Addy tonight, she decided to try her hand at making up a joke.

Addy: Knock knock.

Mama: Who's there?

Addy: Apple.

Mama: Apple who?

Addy:  I don't know.  Can you tell me?