Addy had her first appointment in the Spina Bifida Clinic at Vanderbilt yesterday. She's up to 10lb 14oz already--must be all that eating she keeps doing!
It was a full day at the clinic, but it all went really well. It's set up so that the patient goes to an exam room and the doctors come to you. For people who have a condition that crosses over several medical specialties, it's a fabulous setup. Addy had scans of her kidneys and hips in the morning and in the afternoon saw the neurosurgeon, urologist, orthopedist, nutritionist, physical therapist, and the occupational therapist. We were there for about 45 minutes in the morning and then a couple of hours in the afternoon.
All of the doctors and therapists we saw said she's doing really well, but we did get 2 extra special pieces of news. The best news we got was that Addy's kidney scan and catheter output logs show that she doesn't need to be cathed anymore--hooray! Now, if Addy wants to sleep through the night, Mommy can too! She'd been doing pretty good with sleeping at night for the past couple of weeks. She would usually sleep from about 11pm - 5am, snoozing through the middle-of-the-night cath. Last night she was asleep by 10pm, but got up at 3:45am. Don't get me wrong. I'm happy to do whatever she needs to be healthy, but I'm also happy to get more sleep if she doesn't need me to get up every 4 hours!
Second best news was that the neurosurgeon said that, as far as he's concerned, we can switch from the car bed to a regular infant car seat--can I get an Amen please?? I'm waiting to hear back from the plastic surgeon to make sure he's okay with the switch, but I'm guessing he will be. We've been bringing both the car bed and the regular car seat with us when we go out, using the car bed for actually transporting her to the store and then using the car seat for carting her around in the store. (For those who are curious, our car bed looks very similar to the one on this link: http://www.allegromedical.com/children-pediatric-c531/dream-ride-se-infant-car-bed-p215141.html)
