Friday, May 24, 2013

How many diagnoses does one kid need?

We have noticed that Addy's right foot turns in now, so I made an appointment with her orthopedic surgeon to get it checked out and make sure we weren't undoing the surgery from earlier in the year. Another appointment, another diagnosis: interior tibial torsion (twisting of the shin bone). The surgeon said it's not uncommon in people with spina bifida and it's usually caused by uneven pulling of the ankle muscles. The good news is that he said it won't cause her knee to have abnormal wear and he also doesn't recommend surgery at this point. (There is a surgical option, but he said that you usually just have to repeat it if it's done at an early age. He said 4-5 years old was as young as he would recommend it.) He said there's a night brace we could try, but it doesn't usually work well with kids with SB and may just cause other problems. His best advice: just use the KAFOs as much as possible and work up to having them be the primary brace during the day. Since it does impact her walking when she isn't wearing the KAFOs, we may want to pursue the surgery in a few years if she wants to walk with AFOs, but for now we just need to use the tall braces. This is one of the things I love about our orthopedic surgeon: he explains what's going on, tells you the surgical and non-surgical options for how to address it, and tells you the one he thinks is the right one, even if it doesn't involve cutting into your child.